Who We Are

Welcome to the Huntington's Disease Society of America's Pacific Southwest Region. Our region covers Arizona, Utah, Nevada, and California. Our region includes the following chapters and affiliates: Arizona Chapter, Greater Los Angeles Chapter, Las Vegas Affiliate, Northern California Chapter, Orange County Chapter, San Diego Chapter, and Utah Affiliate.

Our Mission

To improve the lives of everyone affected by Huntington's disease and their families.

Our Vision

A world free of Huntington's disease.

About HDSA

The Huntington's Disease Society of America (HDSA) is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington's disease. From community services and education to advocacy and research, HDSA is the world's leader in providing help for today, hope for tomorrow for people with Huntington's disease and their families. In the battle against Huntington's disease no one fights alone. At HDSA, family is everything.


HDSA Centers of Excellence in Our Region

The HDSA Centers of Excellence provide an elite multidisciplinary approach to Huntington's disease care and research. HDSA currently has 39 Centers od Excellence across the United States. Our region is fortunate to have these institutions as part of this outstanding program:

HDSA Centers of Excellence

University of California, Davis Medical Center (CA)
University of California, Los Angeles (CA)
University of California, San Diego (CA)
University of California, San Francisco (CA)
University of Utah (UT)

HDSA Center of Excellence Partner

Kaiser Permanente (CA)

At these world-class facilities, patients benefit from expert neurologists, psychiatrists, therapists, counselors and other professionals who have deep experience working with families affected by HD and who work collaboratively to help families plan the best HD care program throughout the course of the disease.

For the exact address of each HDSA Center of Excellence, click here for our Locate Resources page. 

Contact Us

Director of Field Operations and Development: 
Nancy Rhodes
P.O. Box 2078
San Marcos, CA 92079
p. (760) 566-9622
nrhodes@hdsa.org

Regional Development Manager, Pacific Southwest:
Nanette Schlarmann
P.O. Box 2078
San Marcos, CA 92079
p. (760) 566-5161
nschlarmann@hdsa.org

Regional Assistant: 
Katherine Bergfors
p. (619) 461-2477
kbergfors@hdsa.org
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